A two-step experience — see the platform as a patient enters data, then see exactly what the dermatologist and researcher receives.
What You Will Experience
1
Patient Entry — Complete a brief clinical check-in the way a patient would between appointments. Takes approximately 60 seconds.
2
Researcher Output — See the structured, validated, research-grade data output — BTH-QoL score, PHQ-2 result, de-identified data fields, and population-level statistics.
3
What This Makes Possible — The research infrastructure this field has been missing — now built.
About This Demo
No information you enter is collected, stored, or transmitted. This is a secure interactive preview of the Beyond the Hairline research platform. Population data shown is for demonstration purposes.
Step 1 of 3 — Patient Entry
Today's Clinical Check-In
Entering data between appointments
Scalp Symptoms — Select All That Apply
Pruritus
Itching of the scalp
Burning / Heat Sensation
Warmth or burning on the scalp
Tenderness / Scalp Pain
Pain on touch or pressure
Tightness / Tension
Feeling of scalp tightness
Stinging / Sharp Sensation
Acute stinging or pins and needles
No Symptoms Today
Symptom-free at time of entry
Symptom Severity (0 = None — 10 = Most Severe)
None (0)Mild (3-4)Moderate (5-6)Severe (10)
0
No symptoms reported
Score updates automatically based on symptoms selected
Symptom Pattern
How Often Do Your Symptoms Come and Go?
BTH Quality of Life Index — Adapted from DLQI, PHQ-2 & Skindex-16
Has your condition affected your self-image, daily activities, or relationships this week?PHQ-2 Depression Screening — Validated Clinical InstrumentOver the last two weeks, have you felt down, hopeless, or like things will not get better?Over the last two weeks, have you had little interest in things you usually enjoy?
Demo: No information is collected or stored anywhere.
Step 2 of 3 — Dermatologist & Researcher View
Structured Research Output
What the platform generates from a single patient entry
Per validated PHQ-2 clinical threshold, this patient may benefit from mental health evaluation. This event has been automatically flagged and logged in the research record per IRB protocol.
De-Identified Patient Data Record
Participant ID
BTH-2026-0847
Entry Timestamp
—
Symptoms Reported
—
Severity Score (0-10)
—
Symptom Pattern
—
QoL Impact (DLQI)
—
BTH-QoL Total
—
PHQ-2 Item 1
—
PHQ-2 Item 2
—
PHQ-2 Total
—
Adverse Event Flag
None
Supabase Record ID
sym_log_0000847
Hair Profile — Data Fields Captured Per Patient
Every registered patient completes a full Hair Profile. These structured fields are captured once and updated as conditions change.
Race / Ethnicity
8 identity options
Hair Loss Onset
Date field — historical
SA Type / Diagnosis
CCCA, LPP, FFA, DLE + more
Styling Practices
Tension, heat, chemical, wigs
Product Use
Scalp products, routines
Treatment History
Rx and OTC — full record
Cost & Spend
Monthly product expenditure
Provider Relationship
Has dermatologist? Satisfaction?
Platform Research Capability
As the patient registry grows, researchers gain access to structured longitudinal data across all forms of scarring alopecia — organized by the categories below and ready for population-level analysis and pharmaceutical partnership.
BTH-QoL Output Categories
Minimal Impact (0-5)Captured
Mild Impact (6-10)Captured
Moderate Impact (11-20)Captured
Significant Impact (21-27)Captured
Severe Impact (28-30)Captured
Scarring Alopecia Types — All Forms Captured
CCCA — Central Centrifugal Cicatricial Alopecia
LPP — Lichen Planopilaris
FFA — Frontal Fibrosing Alopecia
DLE — Discoid Lupus Erythematosus
Folliculitis Decalvans / AKN / Other
Step 3 of 3 — Research Potential
What This Makes Possible
The infrastructure scarring alopecia research has been missing
What Every Patient Entry Generates
A growing, structured, longitudinal patient registry — the first of its kind for scarring alopecia — capturing all forms, all races, all genders
Validated patient-reported outcomes data scored against the BTH-QoL instrument — research-grade, publication-ready, and pharmaceutical-grade
Automatic PHQ-2 depression screening with adverse event logging per IRB protocol standards
De-identified population data that pharmaceutical companies require before committing research funding
What a Physician Referral Unlocks
At Next Appointment
Longitudinal patient record — not recall
For Research
De-identified population data
For Grants
Validated PRO data — NIH ready
For Pharma
Defined patient population with outcomes
For Publications
IRB-certified structured dataset
For SAF
The registry SAF has been building toward
The Infrastructure Gap — Now Filled
❌
No national scarring alopecia patient registry
❌
No standardized PRO database using validated instruments
❌
No IRB-certified community research infrastructure
✓
Beyond the Hairline addresses all three — built independently by a community researcher in Jackson, Mississippi
✓
Built independently — with a clear vision for where scarring alopecia research needs to go next
Beyond the Hairline
beyondthehairline.com
mgeter29@gmail.com · 769.300.1156
Beyond the Hairline Research Platform
CCDEW Nonprofit · Jackson, Mississippi
USPTO Trademark Serial No. 99810808 Demo Mode — No data collected or stored